Subscribe by email, free
Your daily briefing for podcasting and on-demand

Once Upon A Gene - deep links to episodes

Updated UTC · this page updates every two hours

These are magic links to individual episodes for Once Upon A Gene, provided to help you share episode links for this podcast that work on any device.

These links work on everything: they open the episode on Apple Podcasts on an iOS device like an iPhone; will open the episode on the Google Podcasts player on an Android device; and will open a web player on any other device. Right-click a link to copy the link address.

Just want to link to the podcast? Use this magic link: Listen to Once Upon A Gene

Oct 21 2021:Raising a Son with Batten Disease and the Importance of Never Giving Up with Project Sebastian Founder Christopher Velona
Direct links:
Oct 19 2021:Effisode - Two Disabled Dudes
Direct links:
Oct 14 2021:A Rare Collection - Rare Disease Storytelling with Felix Townsin, Erica Jolene Stearns, Brianna Colquitt, and Mahrynn McLaughlin
Direct links:
Oct 7 2021:How We Can Balance and Understand the Unique Struggles We Face with Caregiver Fatigue, Compassion Fatigue, and Decision Fatigue with Counselor Rose Reif
Direct links:
Oct 5 2021:Effisode - The Kids Do NAPA Center in Los Angeles
Direct links:
Sep 30 2021:Strength - How We View It, Define It and Move Through Life with Rare Disease and Chronic Illness with Marni Cartelli
Direct links:
Sep 23 2021:Finding Beauty and Connection When Raising a Medically Complex Kiddo with Melanie Dimmitt - Author of Special - Antidotes to the Obsessions that Come with a Child's Disability
Direct links:
Sep 21 2021:Effisode - Road Trip to NAPA Center
Direct links:
Sep 16 2021:A Rare Collection - Rare Disease Storytelling with Kyle Bryant, Jennifer Siedman, Liz Morris and Ashley Fortney Point
Direct links:
Sep 9 2021:Strength and Inspiration Found Through Rare Disease for Advocacy and a Patient First Movement with CEO of Optime Care - Donovan Quill
Direct links:
Sep 7 2021:Effisode - Ford Goes to Kindergarten
Direct links:
Sep 2 2021:Five Common Errors Made by Recently Diagnosed, Emotionally Overwhelmed Families Without Monetary Resources or Connections with Perlara Founder and CEO - Ethan Perlstein
Direct links:
Aug 26 2021:A Mother's Story of Finding Your People, Accepting a Diagnosis and Loving Her Kid for Exactly Who She is with Jordan's Guardian Angels Mom - Carole Bakhos
Direct links:
Aug 24 2021:Effisode - From the Sidelines
Direct links:
Aug 19 2021:Finding Peace and New Energy to Dig Deeper After 18 Years Undiagnosed with Billie Short
Direct links:
Aug 12 2021:A Rare Collection - Rare Disease Storytelling - Skin In the Game with Adam Johnson, Nathan Peck and Marni Cartelli
Direct links:
Aug 10 2021:Effisode - Rare and Relatable - Rare Disease Stories on Clubhouse with Effie Parks and Bo Bigelow
Direct links:
Aug 5 2021:The 12 Commandments to guide you when you're starting a rare disease patient advocacy group - With Nasha Fitter and Mike Graglia
Direct links:
Jul 29 2021:Leading the World Gene Therapy Program for CTNNB1 With Fellow Rare Mama - Špela Miroševič
Direct links:
Jul 27 2021:Effisode - Your Kids, My Kids - They're All Perfect
Direct links:
Jul 22 2021:Enabling Rare Disease Treatments with Sanath Kumar Ramesh - Founder & CEO of OpenTreatments
Direct links:
Jul 15 2021:A Rare Collection- Re-Runs with Patrick James Lynch, Anna Laurent and Michelle Morganoff
Direct links:
Jul 13 2021:Effisode - Family Camp, Annoying Brothers, and the Doom of Packing
Direct links:
Jul 8 2021:Mental Health and living with chronic stress with Rare Disease Dad and Psychologist, Al Freedman, Ph.D
Direct links:
Jul 1 2021:Discovering New Treatments for Rare Genetic Diseases with Modelis CEO and Co-Founder James Doyle
Direct links:
Jun 29 2021:Effisode - Heatwaves and a Happy Birthday
Direct links:
Jun 24 2021:Living with Persistent Uncertainty without a Rare Disease Diagnosis with Meghan Halley
Direct links:
Jun 17 2021:A Rare Collection - Superheroes
Direct links:
Jun 15 2021:Effisode - Making Cents of it All
Direct links:
Jun 10 2021:Why a Diagnosis Matters with HNRNPH2 Rare Mom Angela Lindig
Direct links:
Jun 3 2021:Helping to Further the Patient Impact of Genomics with DadVocate and Genome Scientist at Congenica - Charles Steward
Direct links:
Jun 1 2021:Effisode - Putting the Play in Playground with DadVocate - Casey Parks
Direct links:
May 27 2021:Relief and Inspiration for Mothers of Children with Rare Diseases with Angel Aid Cares Founder - Cristol O'Loughlin
Direct links:
May 20 2021:Advocates Come in Small Packages - My Life with Blau Syndrome with Keira Howell
Direct links:
May 18 2021:Effisode - Unexpected Moments in the Stairwell
Direct links:
May 13 2021:Rare Disease - The Ultimate Special Teams with Uplifting Athletes with Rob Long
Direct links:
May 6 2021:Rare Disease Adoption with Josh and Monica Poynter
Direct links:
May 4 2021:Effisode - Empathy Puts Some Pep in Your Step
Direct links:
Apr 29 2021:Rare Disease and Grief - Its Ok That You're Not Ok with Megan Devine
Direct links:
Apr 22 2021:Creating Space for Mental Health for Men Living with Rare Diseases with David Ross
Direct links:
Apr 20 2021:Effisode - Adventures in the Grocery Store
Direct links:
Apr 15 2021:Media with a Mission with Believe Limited CEO Patrick James Lynch
Direct links:
Apr 8 2021:Top Tips on Advocating For Your Child with Momvocate Kara Karlson
Direct links:
Apr 6 2021:Effisode - Nacho, Nacho Man
Direct links:
Apr 1 2021:AllStripes - Jump Start New Research for Your Rare Disease with Caitlin Nichols
Direct links:
Mar 25 2021:Rare Mom Madeline Cheney - The Rare Life Podcast
Direct links:
Mar 23 2021:Effisode - An Advocate's Elevator Pitch
Direct links:
Mar 18 2021:Rare Disease Mom Chat with Mariah Gillaspie - Lightning and Love Foundation
Direct links:
Mar 11 2021:David Solomon - CEO of Pharnext - A Biopharmaceutical Company
Direct links:
Mar 9 2021:Effisode - The Friendship Circle - Lilly and Ford
Direct links:
Mar 4 2021:The Importance of Early Intervention with Kindering CEO Lisa Greenwald
Direct links:
Feb 25 2021:Accelerating Clinical Research - Harsha Rajasimha, Founder and CEO of Jeeva Informatics
Direct links:
Feb 23 2021:Effisode - Show Your Stripes With Us This Rare Disease Day
Direct links:
Feb 18 2021:Cure VCP With Rare Disease Trailblazer - Nathan Peck
Direct links:
Feb 11 2021:Ben's Friends A Rare Disease Social and Support Platform with Ben Munoz
Direct links:
Feb 9 2021:Effisode - A Child's Imagination
Direct links:
Feb 4 2021:Connecting the Dots From Patients to Researchers with Jason Colquitt - CEO of Across Healthcare
Direct links:
Jan 28 2021:Hippotherapy and Adaptive Riding with Little Bit Therapeutic Riding Center
Direct links:
Jan 26 2021:Effisode - Growth and Smash Cakes
Direct links:
Jan 21 2021:Rare Mama - Nikki McIntosh - Navigating Life with Rare
Direct links:
Jan 14 2021:Beginners Guide to Rare Disease - Anecdotes For Those Early Days of Diagnosis with Daniel DeFabio
Direct links:
Jan 12 2021:Effisode - Never Underestimate the Determination of Your Child
Direct links:
Jan 7 2021:Seth Rotberg Founder of Our Odyssey and His Mental Health Surrounding a Huntington’s Disease Diagnosis
Direct links:
Dec 31 2020:The Life of an Angel Diagnosed with Blau Syndrome with Cheryl-Lynn Townsin
Direct links:
Dec 29 2020:Effisode - The Magic of Christmas
Direct links:
Dec 24 2020:Cookies4Cures with Dana Perella
Direct links:
Dec 17 2020:The Glass Child - Being a Sibling to My Rare Disease Sisters with Madison McLaughlin
Direct links:
Dec 15 2020:Effisode - Family Dinner
Direct links:
Dec 10 2020:Pediatric Occupational Therapy with OT4Lyfe - Sarah Putt
Direct links:
Dec 3 2020:Palliative Care & the Courageous Parent Network with Founder Blyth Lord
Direct links:
Dec 1 2020:Effisode - Caregiver Personal Trainer Wanted
Direct links:
Nov 26 2020:Turkey Soup for the Soul
Direct links:
Nov 17 2020:Effisode - Out with the Ick
Direct links:
Nov 3 2020:Effisode - Friendship, Inclusion, and Tough Conversations
Direct links:
Oct 22 2020:Living With Chronic Pain - International Pain Foundation President Barby Ingle
Direct links:
Oct 20 2020:Effisode - Making Friends and Talking About Differences
Direct links:
Oct 6 2020:Effisode - Merch, Napa Center, and Beach Adventures
Direct links:
Oct 1 2020:Reflecting on 50 Episodes with Effie and Casey
Direct links:
Sep 24 2020:Thanatophoric Skeletal Dysplasia with Ashequka Lacey
Direct links:
Sep 22 2020:Fake It Til You Make It - Public Speaking, Road Trips and Intensive Therapy
Direct links:
Sep 17 2020:What is Chronically Surviving with Marcelle Longlade
Direct links:
Sep 10 2020:Ciitizen - Take Control of Your Own Medical Records and Advance Research with Nasha Fitter
Direct links:
Sep 8 2020:School Busses, Road Trips and Friendship
Direct links:
Sep 3 2020:A Family Plagued with Rare Genetic Disease, Adrenoleukodystrophy with Diane Kane
Direct links:
Aug 27 2020:Two Disabled Dudes - Kyle Bryant and Sean Baumstark
Direct links:
Aug 26 2020:Rare Together, Watch Together - Film Selections from The Disorder Channel in Partnership with Global Genes
Direct links:
Aug 25 2020:Effisode - Let Me Tell You About My Big Brother
Direct links:
Aug 20 2020:A Mother's Crusade to Find a Cure for Her Son - Amber Freed, Founder and CEO, SLC6A1 Connect
Direct links:
Aug 13 2020:David Fajgenbaum - Chasing My Cure - A Doctor's Race to Turn Hope into Action
Direct links:
Aug 11 2020:Effisode 001
Direct links:
Aug 6 2020:WSU ROAR - Responsibility, Opportunities, Advocacy and Respect with Lisa Henniger
Direct links:
Jul 30 2020:Time is Brain - SynGap Research Fund with Mike Graglia
Direct links:
Jul 27 2020:Bonus Episode - Usher Syndrome Type III with Eleanor Griffith from Grey Genetics
Direct links:
Jul 23 2020:Physical and Emotional Well-Being for the Caregiver with Tyra Skibington
Direct links:
Jul 16 2020:Next Steps - A Journey Through CRPS to an Above the Knee Amputee with Whitney Lavender
Direct links:
Jul 9 2020:Rare Like Us with Taylor Kane
Direct links:
Jul 2 2020:Founder of LakiKid - Sensory Tools for Home and Classroom with Jason Hsieh
Direct links:
Jun 25 2020:Anna Laurent on Alagille Syndrome and Her Road to Advocacy
Direct links:
Jun 18 2020:Sage Graves - Estate Planning, Guardianship, Special Needs Trusts
Direct links:
Jun 11 2020:The Ladies Behind the Edits
Direct links:
Jun 8 2020:Loving Large: A Mother's Rare Disease Memoir With Patti Hall
Direct links:
Jun 7 2020:In Loving Memory of Lucas DeFabio
Direct links:
May 28 2020:Beyond Quarantine: Acceptance, Empathy, and a Better Normal
Direct links:
May 21 2020:Quarantine - What We're Missing, What We're Not, and What We Hope Sticks Around
Direct links:
May 14 2020:Trust Your Instincts; An Early Intervention Can Save Your Life
Direct links:
May 7 2020:Put Your Own Oxygen Mask On First
Direct links:
Apr 30 2020:Rare Disease Trailblazer and Co-Founder of Disorder - The Rare Disease Film Festival
Direct links:
Apr 23 2020:Therapy Check-In With Rose Reif
Direct links:
Apr 16 2020:How Our Rare Kids Can Shape Us
Direct links:
Apr 9 2020:A Grandfather's Story of Guardianship, Caregiving and Advocacy
Direct links:
Apr 2 2020:Choosing Hope
Direct links:
Mar 26 2020:Mental Health and Coping During Covid-19
Direct links:
Mar 19 2020:School Closures and FAPE
Direct links:
Mar 12 2020:A Healthier Healthcare For All
Direct links:
Mar 5 2020:Morgan's Wonderland
Direct links:
Feb 27 2020:Neena Nizar and the Jansen's Foundation
Direct links:
Feb 20 2020:Distressed Genes Aren't Just A Fashion Statement
Direct links:
Feb 13 2020:The Value of Genetic Counselors
Direct links:
Feb 6 2020:The Lucky Few
Direct links:
Jan 30 2020:Films and Fatherhood
Direct links:
Jan 23 2020:A Fellow CTNNB1 Mama
Direct links:
Jan 16 2020:Sibling Support
Direct links:
Jan 9 2020:My Favorite Pair of Genes
Direct links:
Jan 2 2020:Rollin' With Spina Bifida
Direct links:
Dec 26 2019:My Pfeiffer Pfamily
Direct links:
Dec 19 2019:The Fathers Network
Direct links:
Dec 12 2019:Heartism
Direct links:
Dec 5 2019:A Little Love
Direct links:
Nov 28 2019:The Dadurday Chronicles
Direct links:
Nov 21 2019:It's Your Party, and I'll Cry If I Want To
Direct links:
Nov 14 2019:Telomere More About It
Direct links:
Nov 7 2019:Hospital Hair Don't Care
Direct links:
Oct 28 2019:Effie
Direct links:
Oct 28 2019:Effie and Synthiea
Direct links:
Oct 28 2019:Trailer
Direct links:

Get a global view on podcasting and on-demand with our daily news briefing